Individuals are tracking a variety of health-related data via a growing number of wearable devices and smartphone apps.
More and more data relevant to health are also being captured passively as people communicate with one another on social networks, shop, work, or do any number of activities that leave “digital footprints.
Almost all of these forms of “personal health data” (PHD) are outside of the mainstream of traditional health care, public health or health research. Medical, behavioral, social and public health research still largely rely on traditional sources of health data such as those collected in clinical trials, sifting through electronic medical records, or conduct ing periodic surveys.
Self-tracking data can provide better measures of everyday behavior and lifestyle and can fill in gaps in more traditional clinical data collection,giving us a more complete picture of health.
With support from the Robert Wood Johnson Foundation, the Health Data Exploration (HDE) project conducted a study to better understand the barriers to using personal health data in research from the individuals who track the data about their own personal health, the companies that market self-tracking devices, apps or services and aggregate and manage that data, and the researchers who might use the data as part of their research.
Acces Report (pdf): PERSONAL HEALTH DATA
Website Project: HEALTH DATA EXPLORATION PROJECT
photo: (*) Photosolde
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